The Lily Foundation
The Lily Foundation is a charitable trust that raises money to support the families, and mostly child sufferers, of Mitochondrial disease. It also funds research projects such as The Evelina Children’s Hospital research team and the Genetics Team at Guys and St Thomas’ Hospital.
The Lily Foundation was founded in October 2007, following Lily’s death to Mitochondrial Disease earlier that year (see Lily’s story). When Lily was diagnosed, her parents tried to understand what was happening. They were overwhelmed by medical and scientific literature yet still felt as if they knew nothing. Even with the wonderful support of hospital medical staff, they felt completely alone.
After her death, Lily’s parents and uncle, Jonathan Pearce, spoke about setting up The Lily Foundation and they haven’t looked back.
Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily’s strength and inspired by her fighting spirit.
Although The Lily Foundation was founded in Lily’s memory, it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.
The total amount raised by our generous customers so far is: